The Role of Data in Health Sciences Ecosystems: Experiences Within a Psychoeducation-Oriented IT Platform

The Role of Data in Health Sciences Ecosystems: Experiences Within a Psychoeducation-Oriented IT Platform

Samuel Marcos-Pablos, Juan Antonio Juanes-Méndez, Francisco José García-Peñalvo
Copyright: © 2022 |Pages: 17
DOI: 10.4018/978-1-7998-8871-0.ch013
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Abstract

This chapter aims to provide an overview of the importance of data governance in digital ecosystems in the province of healthcare and to place special emphasis on the significance of taking business processes into account from the early stages of development of this type of solution. It should be borne in mind that business processes are not only those that produce economic benefits, but also those that provide added value for the entire ecosystem and make it sustainable over time. The chapter ends by exemplifying the above discussed approach in a specific use case of a platform initially conceived for the psychoeducation of formal and informal caregivers. Said platform has been conceived using a business process modelling approach focused on data exploitation from the early stages of development, which has allowed services, stakeholders, and potential users of the ecosystem to be extended far beyond the initial ecosystem goal.
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Background

Digital health is one of the most important challenges in the province of healthcare. Major international bodies such as the World Health Organization are strongly committed to the potential of data and digital technologies to solve health problems. The Organization's Global Digital Health Strategy (2020 - 2024) promotes improving people's health through the incorporation of digital solutions as to involve and engage the participation of all stakeholders in digital health. As an example, during the last decade the European Union has invested heavily in R&D by funding several proposals for platforms focused on the healthcare sector that has given rise to some open source solutions: LinkSmart (Lamprinakos et al., 2015), OpenAAL (Wolf et al., 2010), UniversAAL (Hanke et al., 2011), Net4Care (Christensen & Hansen, 2012). However, these early developed solutions were mainly focused on providing software media and ontologies for the integration of different telehealth medical devices following standards.

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