Digital Peer Support for People With Severe Mental Illness: Key Concepts and Findings Overview

Digital Peer Support for People With Severe Mental Illness: Key Concepts and Findings Overview

Mafalda da Silva Bento, Felipe Natan Alves Barbosa Carvalho, Inês Beatriz Antunes, Giselle Carpi Olmo
Copyright: © 2022 |Pages: 21
DOI: 10.4018/978-1-7998-8634-1.ch004
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Abstract

The literature has recognized peer support as a fundamental part of the recovery process for people with severe mental illness (SMI). These populations frequently experience barriers related to (self)stigmatization, social relationship, poor friendship quality, ostracism, isolation, and fear of being rejected or embarrassed. Scientific research suggests those individuals are more willing to share personal and sensitive details through digital technologies, building friendships and using the internet to access health information rather than their peers who do not experience SMI. The purpose of this chapter is to explore the digital-based peer programs and to analyze scientific evidence behind the alternative paradigm, related concepts, intervention designs, and results.
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Background

The majority of people affected by Severe Mental Illness (SMI) — schizophrenia, schizoaffective disorder, bipolar disorder, or major depressive disorder — have difficulties accessing care and the largest barriers include lack of trained professionals to comply with the demand, the stigma that mitigates help-seeking and the high cost of treatment (Naslund et al., 2014; O’Leary et al., 2018). Since the demand for care is unlikely to be met by training additional professionals, alternative approaches capable of significantly expand the capacity of mental health care are necessary (Andalibi & Flood, 2021; O’Leary et al., 2018). One way to overcome barriers related to traditional psychiatric services is to provide training and mentoring to develop the capacity of peers with mental health challenges to support each other (O’Leary et al., 2018).

Mental health services have been changed to a recovery-oriented model. Rather than focusing on symptom remission, this movement emphasizes the importance of developing personal goals and values (Peck et al., 2020). Some authors have suggested a framework with five personal recovery topics: 1) social connectedness; 2) hope and optimism about the future; 3) transforming identity; 4) finding meaning and purpose; 5) and finally, empowerment in mental health self-management forming the acronym “CHIME” (Leamy et al., 2011). Within the recovery model, people with SMI have shared their personal recovery experience to help peers increasing a “sense of authenticity, trust, understanding, acceptance and support in developing adaptive self-management strategies, counteracting negative stereotypes of mental illness and making it evident that recovery is possible” (Peck et al., 2020, p. 2). Peer support can offer a culture of health and ability as opposed to a culture of illness and disability by not being based on medical models and diagnostic criteria (Mead et al., 2001).

Key Terms in this Chapter

Peer-Support: Process of giving and receiving help, when people share their experiences with stressful situations, making social connection based on principles of respect, mutual responsibility and trustiness.

Informal Peer Support: Naturally occurring peer support that does not require a peer support specialist or worker that might happen in any social or private context, as long as people feel free and comfortable to share their experiences.

MHealth: Mobile health is the practice of using mobile technology, such as phone, tablets, smart watches and other devices, to manage and improve health conditions.

EHealth: Electronic health is the broader concept to health services that use digital technology and telecommunication.

Synchronous Peer Support: Peer support that happens through technology requiring peers to be connected at the same time.

Recovery Model: Person centered psychosocial rehabilitation model focused on patients’ autonomy, self-management, context and life goals to achieve a hopeful and meaningful life, rather than symptoms remission itself.

Formal Peer Support: Peer support that is moderated by a peer support specialist or worker that has had training and guidance to help their peers through their sharing experience.

Digital Peer Support: Peer support based on health technologies, usually Internet linked.

Asynchronous Peer Support: Peer support that happens through technology that does not requires peers to be connected at the same time.

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