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Top1. Background To The Study
Research is an integral component of any modern health service incorporating evidence-based practice. It is a core part of the healthcare delivery beneficial to the society. Evidence is needed to improve patient’s care, advance understanding of diseases, and evaluate interventions (Perrin, Mathers & Watts, 2008). Medical doctors in federal teaching hospitals conduct research to achieve these purposes. Research practice requires the collection of information about research participants from their health records (HRs) (Value Case Workgroup, 2013).
Nonetheless, health record is one of the core sources of data for research because it contains the most intimate detail about a person’s life. It document patients’ physical and mental health, and include information on social behaviors, personal relationships, and financial status (Gostin & Hodge, 2002). Using health records for research forms a regular part of medical practice, often leading to important discoveries (Value Case Workgroup, 2013). In fact, health records which housed Patient’s Personal Identifying Information (PII) offer significant potential for research because of the wealth of pre-collected data available in it (Perrin, Mathers & Watts, 2008; Safran et al., 2007). Literature revealed that health records played routine and ad hoc roles in research.
Data sources for ad hoc public analyses/studies depend upon the research question and may include primary data collected through surveys, gleaning of data from hospital discharge abstracts or even chart review (Willison, 2009).
Nevertheless, one of the ethical issues relating to use of health records for research is privacy issue. Privacy is the right of an individual to maintain control over certain personal health information contained in health records (Harman, Flight & Bond, 2006). It is the freedom an individual has to determine the time, extent, and general circumstances under which private information will be shared with or withheld from others (National Academy of Engineering, 2006). Privacy addresses the question of who has access to personal information and under what condition. Privacy is concerned with the collection, storage, and use of health records, and examines whether data can be collected in the first place, as well as the justifications, if any, under which data collected for one purpose can be used for another purpose. Some theorists depict privacy as a basic human right with intrinsic value (Moore, 2005; NRC 2007; Terry & Francis, 2007). Privacy addresses the question of who has access to personal information and under what conditions (AHIMA, 2006). An important issue in privacy analysis is whether the individual has authorized particular use of his personal information (Reviewed by Pritts, 2008; Westin, 1967).